Sometimes, in times of hardship and struggles, all you need is a good anthem or a “fight song” to keep you going through the tough times. That’s exactly what 5-year-old Leah did as she battled her Severe Congenital Neutropenia.
For those who don’t know, Severe Congenital Neutropenia is a rare genetic disorder with a deficiency of neutrophils in the bone marrow. Neutrophils are a type of white blood cell that helps aid to cure inflammation.
This means that people with a lack of neutrophils often suffer from recurring infections due to the lack of white blood cells to fight off inflammation.
This video shows how 5-year-old Leah deals with her daily struggles – with a positive song and a smile.
She’s an overcomer. Septic shock, two bone marrow transplants, graft vs. host disease and 325 days away from home in the hospital. God is so good to us through it all and Leah is proof of his mercy and grace! I do not own the rights to this song.
This little girl is fighting a tough battle, but she’s not going to give up! She had her first bone marrow transplant back in 2014 and her second in 2016.
Having to go through two bone marrow transplants in 2 years is a struggle. But imagine having to go through that at such a young age!
Leah is now tackling Graft versus Host Disease (GvHD) – a condition that may occur after an allogeneic transplant. With this, the donated bone marrow or peripheral blood stem cells see the recipient’s body as ‘foreign’ and so the donated cells/bone marrow attack the body rather than help it heal.
However, she has such a positive outlook on life and it brings a tear to your eye.
We just pray that this adorable little girl has a very speedy recovery! Keep singing your fight song, Leah. We believe in you.
Don’t forget to watch this little girl sing a fight song as she tackles her bone marrow transplants in the video below. Also, at Happiest we love hearing all of your opinions. So please let us know what you thought of the article in the comment section. 🐝